EducateNext: Consent Considerations in Clinical and Research Genomics with Katherine (Kate) Bonini, MS, MA, CGC

• As genomic testing continues to expand across clinical care and research, obtaining informed consent has become increasingly complex. This webinar will explore key ethical, legal, and practical considerations in consent to genomic testing and genomic research, including data sharing, secondary findings, future use of samples and data, commercialization, and participant understanding. We will examine how consent challenges differ across clinical and research settings and discuss approaches for supporting informed decision-making in genomic medicine.

  

  Only the live session qualifies for CEUs but when possible, we host the recordings on our website and NSGC recommends participants to use their personal email instead of work email addresses to ensure they receive their CEU certificates.

  

  Ambry Genetics is approved as a provider for continuing education program by NSGC and ASCLS P.A.C.E ® Program.

Katherine Bonini, MS, MA, CGC | Presenter

Core Faculty Member, Institute for Genomic Health; Icahn School of Medicine at Mount Sinai

Katherine (Kate) Bonini, MS, MA, CGC is a Senior Genetic Counselor and Core Faculty member in the Institute for Genomic Health at the Icahn School of Medicine at Mount Sinai. Her work focuses on the ethical, legal, and social implications of integrating emerging genomic technologies into clinical care, with particular emphasis on implementation science and equitable translation of genomic advances into practice. She has contributed to several major NHGRI-funded initiatives, including the Clinical Sequencing Evidence-Generating Research (CSER) Consortium, the Electronic Medical Records and Genomics (eMERGE) Network, and the Human Pangenome Reference Consortium (HPRC). She is also a member of the Mount Sinai Clinical Ethics Committee. Kate received her MS in Genetic Counseling and MA in Medical Humanities and Bioethics from Northwestern University’s Feinberg School of Medicine.

Charlie King, MGC, CGC | Moderator

Clinical Science Liaison; Ambry Genetics

Charlie King is a Clinical Science Liaison at Ambry Genetics. In his current role, he supports clients ordering oncology, cardiology, and rare disease testing. Charlie previously spent 4 years as a clinical oncology genetic counselor working in a community oncology practice. He received his Master of Genetic Counseling degree and is currently an adjunct faculty member at the University of Nebraska Medical Center. He is a member of the National Society of Genetic Counselors and is the vice chair within Access Committee.