What is the hATTR Compass Genetic Testing Program?

Akcea Therapeutics and Ambry Genetics are partnering to offer anonymous, no-cost genetic testing and confidential genetic counseling for patients suspected of having or clinically diagnosed with hATTR amyloidosis.

hATTR Compass is designed to:

  • Help accelerate or confirm the diagnosis of hATTR amyloidosis
  • Provide support and resources to patients, caregivers and healthcare professionals throughout the genetic testing process
  • Empower patients and their healthcare professionals to make the most informed decisions about their health care

Who can get genetic testing?

  • Patients 18 years and older who have a family history of hATTR amyloidosis
  • Patients 18 years and older who are experiencing symptoms of hATTR amyloidosis

Questions about genetic testing?

Genetic counselors are available at no cost, to speak with you on the phone before and after your genetic test.

  • Before your test, a genetic counselor can review your goals, speak with you about any concerns you may have, and help you decide if genetic testing is right for you.
  • After your test, a genetic counselor is available to discuss your results, help you make a plan for your next steps, and answer any questions you may have.
  • To learn more, ask your doctor to connect you with a genetic counselor at PWNHealth, the partner working with the hATTR Compass Program.

How do I order hATTR Compass genetic testing and genetic counseling?

Step 1
Order DNA collection kit

You can sign up for the hATTR Compass here. Order your free hATTR Compass genetic testing kit by completing the form below.

Step 2
Submit DNA sample

Take the genetic testing kit to your doctor for a signature of approval. Be sure to select pre- and/or post-genetic counseling on the ordering form if desired.

Step 3
Understand your options

Your doctor and/or a genetic counselor will receive a report within 2-4 weeks. Talk to these healthcare professionals about your results.

We’re here to help you every step of the way. If you have any questions about the hATTR Compass Program, contact us at +1 949-900-5500.

Order your DNA collection kit

Complete the form below to receive your kit in the mail

Your Info

Shipping Address

Healthcare Provider Info

Note: Physician email and/or phone is required.

The hATTR Compass Program is currently available in the United States and Canada. While Akcea provides financial support for this program, all tests and services are private and performed by independent third parties.

At no time does Akcea receive information about you or your test results.

Tracking my Health

We are teaming up with Backpack Heath to provide you with a resource to help manage your health.

Backpack Health supports those living with complex health conditions like hATTR amyloidosis, providing tools for health management and contributions to research.

Create a profile and easily keep track of important details of your health, including the results of your genetic test.

Backpack Health is an iPhone, Android and web-based app.

Join today and receive complimentary PRO access

Join Now
Available for iPhone, Android & web

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