What is the hATTR Compass Genetic Testing Program?

Akcea Therapeutics and Ambry Genetics are partnering to offer no-cost, confidential genetic testing and confidential genetic counseling to patients through the hATTR Compass Genetic Testing Program who are clinically suspected of having hereditary ATTR amyloidosis with polyneuropathy as well as individuals with a family history of hereditary ATTR amyloidosis.

The hATTR Compass Program is available for patients 18 years and older who have symptoms consistent with hereditary ATTR amyloidosis with polyneuropathy as well as individuals who have a family history of hereditary ATTR amyloidosis.

hATTR Compass is designed to:

  • Help accelerate or confirm the diagnosis of hereditary ATTR amyloidosis with polyneuropathy
  • Provide support and resources to patients, caregivers and healthcare professionals throughout the genetic testing process
  • Empower patients and their healthcare professionals to make the most informed decisions about their health care

Who can get genetic testing?

  • Patients 18 years and older who have symptoms consistent with hereditary ATTR amyloidosis with polyneuropathy
  • Patients 18 years and older who have a family history of hereditiary ATTR amyloidosis

Questions about genetic testing?

Genetic counselors are available at no-cost to speak with you on the phone before and after your genetic test.

  • Before your test, a genetic counselor can review your goals, speak with you about any concerns you may have, and help you decide if genetic testing is right for you.
  • After your test, a genetic counselor is available to discuss your results, help you make a plan for your next steps, and answer any questions you may have.
  • To learn more, ask your doctor to connect you with a genetic counselor at a third party genetic counseling service working with the hATTR Compass Program.

How do I order hATTR Compass genetic testing and genetic counseling?

Step 1
Order DNA collection kit

You can sign up for the hATTR Compass here. Order your free hATTR Compass genetic testing kit by completing the form below.

Step 2
Submit DNA sample

Take the genetic testing kit to your doctor for a signature of approval. Be sure to select pre- and/or post-genetic counseling on the ordering form if desired.

Step 3
Understand your options

Your doctor and/or a genetic counselor will receive a report within 2-4 weeks. Talk to these healthcare professionals about your results.

We’re here to help you every step of the way. If you have any questions about the hATTR Compass Program, contact us at +1 949-900-5500.

Order your DNA collection kit

Complete the form below to receive your kit in the mail

Your Info

Shipping Address

Healthcare Provider Info

Note: Physician email and/or phone is required.

Disclaimer: By submitting this form, I understand that Ambry may need to contact me regarding my sample kit or if they have a question regarding my genetic test.

The hATTR Compass Program is currently available in the United States, Canada and Puerto Rico. While Akcea provides financial support for this program, all tests and services are private and performed by independent third parties.

At no time does Akcea receive information about you or your test results.

Staying connected through Backpack Health

Backpack Health is a mobile and web-based app that helps patients keep track of their symptoms, procedures, diagnostic tests and ongoing treatment for hereditary ATTR amyloidosis with polyneuropathy. The tool also makes it easy for individuals and families navigating the hereditary ATTR amyloidosis with polyneuropathy journey to share important medical information with healthcare professionals. Access to the app is complimentary for patients with hereditary ATTR amyloidosis with polyneuropathy as a part of the hATTR Compass Genetic Testing Program.

Find out the basics about Backpack Health and how it help you on your patient journey here.

Learn more about how you can use Backpack Health to organize and manage your health details and share them with the people who need to know using the user guide here.

Questions about Backpack Health? Get answers to your frequently asked questions about Backpack Health here.

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Available for iPhone, Android & web

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