Inherited Arrhythmias Webinar - Part 2: The Family Experience with Sudden Death

  • This free webinar, second in a three-part series, will provide a family perspective of sudden death. Two healthcare providers will present cases of sudden death and two patients, who experienced the sudden loss of a family member, will share how they received information from their heathcare team. Family members will also discuss the experiences they had throughout the different stages of their journey.

     

Pediatric Nurse Practitioner, Electrophysiology, University of Michigan Congenital Heart Center

Ms Dechert received her master in science of nursing at Loyola University Chicago in 2004 and has worked with pediatric arrhythmia patients since that time. In her current role at the University of Michigan, she cares for patients with sudden death conditions, children and adolescents with arrhythmias and those with pacemakers and ICDs. In addition to her clinical role, she has multiple research interests in pediatric patients with arrhythmias and sudden death conditions. Ms Dechert is a board member of the SADS foundation and is a SADS Foundation Medical Education Committee member.

Registered Nurse for Community Mental Health

Ms. Hardies and her husband had 4 children, 2 boys and 2 girls. In September 2002 they lost their 13 year old son in what was initially deemed an accidental hunting accident, and December 25, 2007 their 21 year old daughter had a Torsades event, that eventually resulted in her death.  These events began a family journey with Long QT2 and genetic testing.

Licensed Genetic Counselor, Heart and Vascular Center, UCSF Medical Center

Julianne Wojciak coordinates the Cardiovascular Genetics Program and provides genetic counseling services for patients with hereditary heart conditions.  She assesses a patient’s medical and family history to determine the genetic nature of heart disease in the family, discusses the benefits and limitations of genetic testing and cardiovascular screening, and helps families understand and cope with the emotional and familial implications of inherited heart conditions.  She co-created Kinlist, an online resource and medical assessment tool for family members of sudden cardiac death victims.

Julianne received her masters of science degree in genetic counseling from the University of Colorado, Health Science Center in Denver, Colorado.  Prior to coming to UCSF, Julianne counseled patients and families at risk for inherited cancer syndromes and coordinated of a variety of research studies related to hereditary cancer at UCLA.

Established expert in entertainment and lifestyle journalism, content marketing and social media strategy.

She is currently the Editorial Director of Glassdoor, the fastest growing jobs and recruiting site. The Stanford University alum and proud 'LA girl' has spent 10 years as an award-winning journalist on both digital and print platforms including PEOPLE Magazine and MSN . She continues to work with top brands such as Facebook, Lexus, Essence Magazine, Fast Company and iVillage.

Amy currently resides in Oakland, CA where she and her husband Jeremiah are just a car ride away from attending Stanford football games and cheering on the Golden State Warriors. They enjoy “Game of Thrones, Dungeness crab and traveling the globe.
 

  • Wed, August 17, 2016
  • 11:00am PDT
  • Duration: 58 minutes
  • C.E.U. --
  • P.A.C.E. --

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